International Patient Organisation for Primary Immunodeficiencies
IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organizations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide.
Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders. The small group of representatives from the primary immunodeficiency (PID) community who met in 1990 identified the need to start an organization that provides international representation and support to national PID patient groups around the world.
Prominent among those responsible for the creation of IPOPI were Bob LeBien, (IPOPI Life President), Professor Helen Chapel, leading UK clinician (IPOPI Honorary Vice President), Martin Gatehouse, a parent from Switzerland, Robin Fanshawe and Fiona Sandford from Primary immunodeficiency Association (former UK patient group, PiA), and Maj-Lis Helstrom a parent from Sweden.Ever since its creation IPOPI has made it its mission to improve awareness, access to early diagnosis and optimal treatments for PID patients worldwide.
Mr. Johan Prevot